So i wanted to give an update on our doctoring at CHOP.  We went back in beginning of Decemeber and the blood work was ok, but definately not where we wanted it for Walker. Lincoln's looked positive, however we were waiting to check his titers, as he approached 1.

We just went for our check up last week at CHOP which went basically fine and we were just awaiting the blood results. I had the boys' wellness appointments with my pediatrician on wednesday morning and that same morning I was waiting for a call from our Dr. at CHOP with the results. I thought how cool if she calls while I'm in this office and I could tell our peditatician the latest! Well she called 2 hours after i left the office. ;) Anyway, the good -was Lincoln's blood work looked great, right where he should be for his age.  The bad news- Walker's did not look great.  He is making good immunoglobulins (IgG, IgA, etc.) however his titers from Hib, DPT, and pnuemoccocal looked horrible. He is basically not protective against any of those. 

So...back to the pediatrician the next morning to get more vaccinces! He was so brave! I asked him after the appointment if it hurt, he said, "yes!"  Then I asked him, "why didnt you cry then?,"  he replied, " because I'm NOT a baby!" He is too cute!
So now we will recheck his blood work 4 weeks after the booster vaccines, and decide on a plan for the future. He still remains on prophylactic antibiotics. We could end up playing this game for two more years until he is 5, and at that point he will have grown out of it, or it will remain an issue and we will put him on an antibody replacement therapy program which would include monthly infusions of the antibodies he doesn't produce.

So half of me wants to freak out when I hear this news! What!? He's not protective against Hib (not to mention that's what Brady died of), Pnuemococcal (so prevalent in society), and diphteria and tetanus?!
And the other half wants to say, we are doing everything we can do, God is in control and His plan is best.  So I am here staying strong and whenever my mind wants to go crazy I lift the situation up in prayer and surrender it to the only One who can take these problems and worries away.  And believe me I feel so much better when I give my cares to Jesus, the only true one who can take them away and give me an indescribable peace!

Happy Birthday Brady Boy!

As we get ready to celebrate Brady's 5th birthday tomorrow, it makes me think about how we know this is God's plan, but it doesn't take away the fact that we still miss him on earth.  Which then leads me to think about God's love for us, His children.  I know how much I love and miss my Brady boy but God loves us even more?  Yep. Wow. I can't even fathom how much it greives Him when we stray from His side, distance ourselves or disobey His commands (every day!).  He desires to be near to us and for us to want to spend time with Him.  After all, He created us to bring Him glory.  I hope and pray that as I think of Brady and the joy he brought to us the short time he was here, I can remember God's grace and mercy towards me and try to love Him more, and bring Him glory. 

One of the fun memories of Brady that i think of, especially as spring approaches (or shall i say is here!), is when we had a TON of caterpillars in our yard (and i mean millions!).  He would constanly pick them up and play with them, and maybe even try to eat them.  Wonder if there are caterpillars in heaven that he is playing with now?! Love it! Miss you buddy, Happy birthday, hope your partying it up!! Save your mama a place....